Rep. Norm Thurston — Voting Record

Bill

Number

H.B. 199 First Substitute (2015GS)

Sponsor

Rep. Redd, E.

Final action

Governor Signed 3/26/2015

Outcome

Became law — signed by Gov. Gary R. Herbert

Summary

What it does

• This bill:
• directs the Department of Health to apply for a Medicaid waiver for children with disabilities and complex medical conditions.

Every vote on this bill

Bill text

PILOT PROGRAM FOR ASSISTANCE FOR CHILDREN
WITH DISABILITIES AND COMPLEX MEDICAL
CONDITIONS
GENERAL SESSION
STATE OF UTAH
Chief Sponsor: Edward H. Redd
Senate Sponsor: 
Curtis S. Bramble
Cosponsors:
Rebecca Chavez-Houck
Brad M. Daw
Jack R. Draxler
Steve Eliason
Francis D. Gibson
Brian M. Greene
Sandra Hollins
Michael S. Kennedy
David E. Lifferth
Lee B. Perry
Paul Ray
Angela Romero
Robert M. Spendlove
Earl D. Tanner
Norman K Thurston
Raymond P. Ward
John R. Westwood
LONG TITLE
General Description:
This bill directs the Department of Health to apply for a Medicaid waiver for children
with disabilities and complex medical conditions.
Highlighted Provisions:
This bill:
▸ directs the Department of Health to apply for a Medicaid waiver for children with
disabilities and complex medical conditions.
Money Appropriated in this Bill:
None
Other Special Clauses:
None
Utah Code Sections Affected:
ENACTS:
26-18-410
, Utah Code Annotated 1953
Be it enacted by the Legislature of the state of Utah:
Section 1. Section 
26-18-410
 is enacted to read:
 26-18-410.
Medicaid waiver for children with disabilities and complex medical
needs.
(1) As used in this section:
(a) "Complex medical condition" means a physical condition of an individual that:
(i) results in severe functional limitations for the individual; and
(ii) is likely to:
(A) last at least 12 months; or
(B) result in death.
(b) "Program" means the program for children with complex medical conditions
created in Subsection (3).
(c) "Qualified child" means a child who:
(i) is less than 19 years old;
(ii) is diagnosed with a complex medical condition;
(iii) has a condition that meets the definition of disability in 42 U.S.C. Sec. 12102; and
(iv) meets the additional eligibility criteria determined by the department under
Subsection (4).
(2) The department shall apply, no later than June 30, 2015, for a Medicaid home and
community-based waiver with the Centers for Medicare and Medicaid Services within the
United States Department of Health and Human Services to implement, within the state
Medicaid program, the program described in Subsection (3).
(3) If the waiver described in Subsection (2) is approved, the department shall offer a
program that:
(a) as funding permits, provides treatment for qualified children; and
(b) accepts applications for the program during periods of open enrollment.
(4) The department shall:
(a) seek to prioritize, in the waiver described in Subsection (2), entrance into the
program based on the:
(i) complexity of a qualified child's medical condition; and
(ii) financial needs of a qualified child and the qualified child's family;
(b) convene a public process to determine:
(i) the benefits and services to offer a qualified child under the program; and
(ii) additional eligibility criteria for a qualified child; and
(c) evaluate, on an ongoing basis, the cost and effectiveness of the program.
(5) The department shall annually report, beginning in 2016, to the Legislature's Health
and Human Services Interim Committee before November 30 while the waiver is in effect
regarding:
(a) the number of qualified children served under the program;
(b) the cost of the program; and
(c) the effectiveness of the program.